Canadian Detransitioners Felt Under-Informed Before Treatment and Want Individualised Care With Mental Health Support

Exploring the gender care experiences and perspectives of individuals who discontinued their transition or detransitioned in Canada

Authors
Kinnon R. MacKinnon, W. Ariel Gould, Gabriel Enxuga, Hannah Kia, Alex Abramovich, June S. H. Lam, Lori E. Ross
Journal
PLOS ONE
Year
2023

Summary

Researchers interviewed 28 Canadians who had stopped or reversed a gender transition about how they got care and how it could be better. Most went through clinics that assessed them before treatment. Many felt the process pushed a fixed, step-by-step path toward becoming fully male or female, and that talks about consent were rushed or shallow. Those who regretted treatment often felt they had not been told enough about risks. Some believed their same-sex attraction, trauma, autism or mental illness had not been looked at. One person agreed to testosterone while on a day pass from a psychiatric hold. Most still valued making their own choices and wanted care tailored to them, with mental health support. The stories are useful, but they come from a small, self-selected group, most of whom still identify as trans.

Key findings

  • 28 people aged 20 to 53 were interviewed between October 2021 and January 2022; 71% were in their twenties and 64% were born female.
  • 27 had taken cross-sex hormones and 11 had surgery, including double mastectomy (8), removal of ovaries or testes (6) and genital surgery (3); one had used puberty blockers (drugs that pause puberty).
  • 57% said they had held three or more gender identities over time, and 60% moved from a male or female trans identity at the start to a nonbinary identity later.
  • About one in three expressed regret or mixed feelings about transitioning, and both people who began medical transition at 15 regretted it.
  • Regret was often described together with feeling under-informed about risks, benefits and other options before treatment.
  • Some felt that discomfort with being same-sex attracted, trauma, autism or mental illness had fed their distress and was never explored by clinicians.
  • Most still supported people making their own decisions and recommended tailored, 'neutral' care alongside mental health support.

Abstract

Background: Those who detransition have received increased public and scholarly attention and their narratives are often presented as evidence of limitations with contemporary gender-affirming care practices. However, there are scant empirical studies about how this population experienced their own process of gaining access to gender-affirming medical/surgical interventions, or their recommendations for care practice.

Aims: To qualitatively explore the care experiences and perspectives of individuals who discontinued or reversed their gender transitions (referred to as detransition).

Methods: Between October 2021-January 2022, Canadian residents aged 18 and older with experience of stopping, shifting, or reversing a gender transition were invited to participate in semi-structured, one-on-one, virtual interviews. A purposive sample of 28 was recruited by circulating study adverts over social media, to clinicians in six urban centres, and within participants' social networks. Interviews ranged between 50-90 minutes, were audio-recorded, and transcribed verbatim. Following constructivist grounded theory methodology, interview data were analyzed inductively and thematically following a two-phase coding process to interpret participants' experiences of, and recommendations for, gender care.

Results: Participants were between the ages of 20-53 (71% were between 20-29). All participants identified along the LGBTQ2S+ spectrum. Twenty-seven out of 28 of the participants received medical/surgical interventions (60% were ages 24 and younger). A majority (57%) reported three or more past gender identities, with 60% shifting from a binary transgender identity at the time of initiating transition to a nonbinary identity later in their transition journey. To access medical/surgical interventions, most participants were assessed via the gender-affirming care model pathway and also engaged in talk therapy with a mental healthcare provider such as a psychologist or psychiatrist. Some participants experienced their care as lacking the opportunity to clarify their individual treatment needs prior to undergoing medical/surgical transition. Decisional regret emerged as a theme alongside dissatisfaction with providers' "informed consent" procedures, such that participants felt they would have benefitted from a more robust discussion of risks/benefits of interventions prior to treatment decision-making. Overall, participants recommended an individualized approach to care that is inclusive of mental healthcare supports.

Conclusions: To optimize the experiences of people seeking and receiving gender care, a thorough informed consent process inclusive of individualized care options is recommended, as outlined by the World Professional Association of Transgender Health, standards of care, version 8.

Conclusion

To optimize the experiences of people seeking and receiving gender care, a thorough informed consent process inclusive of individualized care options is recommended, as outlined by the World Professional Association of Transgender Health, standards of care, version 8.