Bioeticianul avertizează: Justificările 'bazate pe autonomie' pentru medicina pediatrică de gen pun pacienții în pericol

Care este scopul îngrijirii PEDIATRICE 'de afirmare a genului'?

Authors
Moti Gorin
Journal
Hastings Center Report
Year
2024

Summary

Philosopher Moti Gorin asks what gender medicine for young people is meant to achieve. The original Dutch treatment plan aimed to improve young people's mental and physical health. But reviews in England, Sweden and Finland found the evidence for those benefits is weak. Some ethicists, notably Florence Ashley, now argue that blockers, hormones and surgery are justified by patients' wishes for their bodies and their right to choose, not by health gains. Gorin argues this clashes with medicine's duty to do no harm. A patient's right to choose means choosing between options doctors can justify, not demanding any treatment they want. He concludes that serious treatments for minors need good evidence that benefits outweigh risks. This is a philosophical argument, not new data. He admits it mostly argues against a view, and the journal published several critical replies.

Key findings

  • Ghidurile din SUA susțin blocantele pubertății, hormonii de sex opus și chirurgia pentru tinerii cu suferință legată de gen, dar Anglia, Suedia și Finlanda au făcut un pas înapoi după ce analizele au găsit dovezi slabe ale beneficiului.
  • Studiile olandeze originale care au început tranziția tinerilor aveau defecte serioase: niciun grup de comparație, un mod defectuos de măsurare a suferinței legate de gen și pacienți foarte diferiți de cei de azi.
  • Unii eticieni susțin că tinerii ar trebui să aibă dreptul la aceste tratamente pe baza propriilor obiective corporale și a libertății de a alege, fără dovada unor beneficii pentru sănătatea mintală sau chiar fără un diagnostic.
  • Gorin susține că aceasta intră în conflict cu datoria de bază a medicinei de a nu face rău: dorința unei schimbări corporale nu este un motiv suficient pentru un tratament riscant fără dovezi că ajută sănătatea.
  • El spune că țările diferă în parte pentru că judecă dovezile diferit (analize sistematice atente față de sinteze mai laxe ale experților) și în parte pentru că nu sunt de acord dacă medicina ar trebui să îmbunătățească sănătatea sau să împlinească obiective de identitate.

Abstract

The original “Dutch Protocol”—the treatment model comprised of puberty blockers, cross-sex hormones, and surgery—was intended to improve the mental and physical health of pediatric patients experiencing distress over their sexed bodies. Consequently, both researchers and clinicians have couched eligibility for treatment and measures of treatment efficacy in terms of the interventions’ effects on outcomes such as gender dysphoria, depression, anxiety, and suicide. However, recent systematic reviews have concluded that the scientific evidence supporting these interventions is uncertain, leading to significant international differences in what treatments are offered to youth. Against this backdrop, a different argumentative approach has emerged in support of gender-affirming care. This approach appeals not to reductions in patient morbidity or mortality but to patient autonomy, where medical intervention is pursued as a means to the satisfaction of a patient's “embodiment goals.” In this article, I raise objections to autonomy-based justifications for pediatric gender-affirming care, concluding that these arguments misunderstand the place of autonomy in clinical decision-making and, consequently, put patients at risk of medical harm.

Conclusion

This article argues that the autonomy-based view—according to which medical interventions for gender dysphoria in youth ought to be guided by patients' embodiment goals rather than measurable health outcomes—is misguided, as it conflicts with medicine's long-standing commitment to nonmaleficence. The author contends that transition-related medical treatments for youth are justified only if there is good evidence of a favorable risk-benefit profile in terms of measurable health outcomes; an adolescent's desire to obtain particular sex characteristics is not sufficient to establish a right to such interventions. The author critiques consequentialist arguments (including those appealing to gender euphoria, creative transfiguration, dehumanization, and social marginalization) and autonomy-based arguments (including the right to an open future and an analogy to reproductive healthcare), finding them all insufficient to justify departure from the traditional medical aim of protecting and promoting patient health. The practical upshot is that, absent compelling reasons to abandon this commitment, the medical profession should reaffirm that serious medical interventions require strong evidence of a favorable risk-benefit profile for treating physical and psychiatric morbidity and relieving suffering. The author acknowledges the limitation that this article is largely negative and does not fully articulate a positive philosophical account of health or the aims of medicine, but hopes to have surfaced conceptual and moral tensions in contemporary pediatric gender medicine.